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Messages - Shaymin

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Random Randomness / Re: first world problems
« on: February 17, 2018, 17:53 »
That earthquake totally distracted me.

 Was cool to experience it tho. Unless a nuke went off somewhere, nukes aren't cool.
I was on the couch when it happened, but I didn't know it was an earthquake til an hour later lol

Random Randomness / Earthquake in South Wales
« on: February 17, 2018, 17:51 »
At 2:31:04 today there was a magnitude 4.4 (ish) earthquake at 11km depth just north of Swansea. Did you feel it?
I was sat on the couch when it shook in a sideways one-two motion. I thought it was one of my dogs kicking the couch in their sleep, but neither were close enough for it to have been one of them. My mum and brother were both upstairs and felt it too.

Here is a link to the USGS site, so you can see that I'm not crazy.

Random Randomness / Re: Everyday Accomplishments
« on: February 06, 2018, 23:56 »
i made my first vid in vegas pro and yeah it's a meme of the space tesla but i did it and i can't help but be proud

Random Randomness / Re: Where is everybody?
« on: February 06, 2018, 12:13 »
all the OG members are dead inside by now
That's adulthood for you I guess

Random Randomness / Re: Where is everybody?
« on: February 05, 2018, 23:31 »
i grew out of this site, went to college, did uni and stuff and now i have returned to save you all from death
too late man i died years ago

Random Randomness / Re: first world problems
« on: February 02, 2018, 23:41 »
wheezes i finally got two dates i've been waiting on

first one is my assessment for my physical and mental health for this mess that's called universal credit. i'm mildly worried about that considering how my pip assessor lied through her teeth about my health. on the plus side i guess i'm... worse??? than i was when i had my pip assessment and i have a whole two (2!) new diagnoses.

and the second one is my pip tribunal date. which, to put it lightly, i am having a code brown about. it's in less than three weeks. how am i going to prove to a judge and a doctor that i'm as ill as i say i am??? my physical disabilities aren't visible, and neither is adhd so lmao. there's also the fact that 65% of tribunals succeed which gives me a 35% chance of failure which is terrifying. thankfully my mum will be there and she's been through this garbage before. doesn't realy change the fact i'm bricking it here

PKMN.NET / Re: Nothing works!
« on: February 01, 2018, 15:37 »
get rid of the s in https and it should work.

Random Randomness / Re: Everyday Accomplishments
« on: January 20, 2018, 21:49 »
What is that?
chronic pain for no apparent reason. you know like, when you have a bruise and you brush against it and it hurts? it's like that. but no bruises. and everywhere.

on the plus side, the pokemon go community day was today with 3 hours to catch surf pikachu and this gorgeous lil beaut spawned

Random Randomness / Re: Everyday Accomplishments
« on: January 19, 2018, 17:52 »
I finally got a got damn Official ™ diagnosis for fibromyalgia! I went to see a young locum a few times who actually listened and was honest with me. So now it's real and I can say "yes, I have this eat my entire ass DWP."

Sun and Moon / Re: Odd feeling
« on: January 14, 2018, 17:20 »
USUM at the start, for me, was kind of boring. my attention was being grabbed by other games, but then i finished said other game and was like ok i guess i'll play Ultra Sun some more - and it pulled me in. i started doing more that i hadn't done before (shiny chaining for instance) and eventually finished the game. i haven't played it in a few days bc i've had a lack of energy but yeah, i get it. slow to start off, but it should sink it's claws into you eventually

Random Randomness / Re: Everyday Accomplishments
« on: January 08, 2018, 02:17 »
yaaas chained me a shiny cutiefly 👌👌👌 named him fae i love him he's pink

TV and Movies / Re: Your Favourite Disney Film
« on: January 07, 2018, 16:00 »
What is it?
lilo and stitch I literally typed it in e frost sentence of thr second paragraph

TV and Movies / Re: Your Favourite Disney Film
« on: January 07, 2018, 01:19 »
i'm not gonna choose pre and post toy story bc my fav 2d was post toy story soooooooooooo

my fave 2d is lilo and stitch, and my fave 3d is a toss up between moana and brave. moana has rly good music and i rly love it but brave is scottish so there is that lol

Random Randomness / Re: Everyday Accomplishments
« on: January 02, 2018, 13:48 »
Aw yiss pals I just had my first successful shiny chain in Ultra Sun and got me a lemony fresh Stufful. Her name is Steiff I love her she's yellow.

Random Randomness / Re: first world problems
« on: December 30, 2017, 18:32 »

i havent' had my brain work good medication so my reading comprehension is garbagio and so is my everything else

throw this at them while yellin at them about their hippopotamus oath (the nice guidelines are how i know im due 10 sessions of acupuncture (????????????) if i finally lose my rag with topirimate so its good to know)

acupuncture is something i wouldn't want 2 do bc of the fibro like symptoms i have lol. gentle touch feels like punch and the last time i had blood taken it hurt like buggery sdjfklsdf

your Game Plan with docs is getting a referral to either an occupational therapist or a physiotherapist if you can + finer subdiagnoses of wth is going on 

if you been bonafide proper diagnosed w/ hypermobility and everything they should be offering you some form of referral for some kind of ~~~~~non-pharmacological~~~~~ treatment especially since the GPs should be going "hmmery we should be reducing dependance on opiods" cos dang if the opiod painkiller industry Problem & The Trouble With ΔFosB Overexpression & why the hell fentanyl deaths (both legal and heroin spiked) are now even being a thing and is like....omg dont even get me started cos i just sound so Conspiracy Theory about it

yea i got the hypermobility diagnosis when i was uhhhhhhhhhhh 21/22 after it starting when i was 13/14 (ten years of this bs what genetic lottery crap is this smh). docs have tried putting me on the other fam of medications and i was put on naproxen but me and naproxen don't get along. it gets rid of the pain BUT instead i get horrible stomach cramps and i feel like my joints are made of cotton wool and sugar paper so i went back to the docs like "can i have my codeine back? thnx". they're super hesitant to put me on anything stronger (and when i went to the hospital a few years back for my heart the doc said "codeine wow we should get you off of that!" and i said "i've only just been put on it" and he wa slike "o" orz

NHS rules also say you're entitled to a Second Opinion/complaining about it and usage of this thing called PALS for when your doc is bein a bit of a dic so use them both!! i know its tempting to give up and go "why bother" in an eeyore voice esp since the nhs is now falling to bits or w/e with glorious brexit but STILL

yeah it's just this one particular doctor who seems to just brush me off?? i only picked her on the booking thing bc i didn't fancy getting up at 7am. thankfully i don't think she's my specific gp coz otherwise i'd be annoyed as heck. tryng to get in to see one of the docs soon but the only free ones when i check are either 1) ass end of the morning or 2) temporary docs so i'm more hesitant to pick them

also you should have been givena leaflet with this this support group post-diagnosis with a helpline you can ring. not quite the same but as a lungnerd we have the British Lung Foundation and you ring them up and they tell you how to talk to the GPs to get what you want and where you want to go with ur feeble lungs (its staffed by asthma nurses and in ur case the helpline on the hypermobility site is staffed by hypermobility sufferers) so you should give the Bendy Joints version one a try??? they have an email address somewhere on the site to email for advice/help (technically under the kids/teens section but you can cheat and go ''sorry im a bit of a mental childe i guess im too scared to ring the telling communy occastions number'' like i would lmao. ive found if you're in total doubt and epical autism is failing you completely you can just go in completely the wrong place and act a bit useless sometimes & they'll give you The Aw Diddums Look but point you in the right direction)

i never got a leaflet it was just a "yeah ur bendy lol bye" and that was basically it. i got sent to the physio for 9 months but the exercises didn't rly seem to help??? and i'm ngl i haven't rly been keeping up with them bc i don't have Energy and also Forgot What Exercises i was given after I got the inistial bit of paper kaldsja

also p.s. i can't remember if you said you had any kind of MRIs or any kind of scans or anything but i guess just cos i had one friend who had a terrible lower back and arthritic stuff and it turned out she had anklyoising spondylitis you could probably get that checked out but say that to the docs and they really WILL think you been Dr Googleing it unfortch. but i guess make sure theres no family history of backbones fusing together

p.p.s the website said he avg time for diagnosis of hypermobility let alone treatment was 10 years so you're doing slightly well in that respect i guess????????????? fwiw

nah last time i had any sort of stuff like that in a hsopital was wehn i was living in bangor and got sent to the hospital twice for chest pains and it was just an x-ray. i do have a family history of back issues (mum got issues dad got issues) but unfortunately bc we don't know who my maternal grandad is that's a big fat ???? there. i just need 2 find a doc who won't be like "you should get out more!" when it comes to me saying "i hurt all the time????" like pls what about a 24 yr old who can't do anything bvc of pain is normal??????? dksfl;sd

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