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^ This is why I went to a chiropractor to get my back issues sorted. Actually, it was a doctor that referred me and I always thought they hated them.
My back's been hurting for at least a year now. I've gone to the docs practically every month and only one did a minor check (said I had good range of movement, like yeah that's what hypermobility does lol) but no one has passed me on. It's getting to the point where my back actually hurts more than the rest of me, and hurts to the point where it's the only thing I can think of (which is like a 9/10 on the pain scale). It's just getting beyond ridiculous now and I hate going back and back and back to the doctors (ha, back) when nothing seems to get done.It took me 8 years to get a diagnosis for joint hypermobility so I'm not gonna get my hopes up. At this rate I'll be 32 by the time anyone goes "Oh yeah, 8 year long back pain? That's weird."
throw this at them while yellin at them about their hippopotamus oath (the nice guidelines are how i know im due 10 sessions of acupuncture (????????????) if i finally lose my rag with topirimate so its good to know)
your Game Plan with docs is getting a referral to either an occupational therapist or a physiotherapist if you can + finer subdiagnoses of wth is going on if you been bonafide proper diagnosed w/ hypermobility and everything they should be offering you some form of referral for some kind of ~~~~~non-pharmacological~~~~~ treatment especially since the GPs should be going "hmmery we should be reducing dependance on opiods" cos dang if the opiod painkiller industry Problem & The Trouble With ΔFosB Overexpression & why the hell fentanyl deaths (both legal and heroin spiked) are now even being a thing and is like....omg dont even get me started cos i just sound so Conspiracy Theory about it
NHS rules also say you're entitled to a Second Opinion/complaining about it and usage of this thing called PALS for when your doc is bein a bit of a dic so use them both!! i know its tempting to give up and go "why bother" in an eeyore voice esp since the nhs is now falling to bits or w/e with glorious brexit but STILL
also you should have been givena leaflet with this this support group post-diagnosis with a helpline you can ring. not quite the same but as a lungnerd we have the British Lung Foundation and you ring them up and they tell you how to talk to the GPs to get what you want and where you want to go with ur feeble lungs (its staffed by asthma nurses and in ur case the helpline on the hypermobility site is staffed by hypermobility sufferers) so you should give the Bendy Joints version one a try??? they have an email address somewhere on the site to email for advice/help (technically under the kids/teens section but you can cheat and go ''sorry im a bit of a mental childe i guess im too scared to ring the telling communy occastions number'' like i would lmao. ive found if you're in total doubt and epical autism is failing you completely you can just go in completely the wrong place and act a bit useless sometimes & they'll give you The Aw Diddums Look but point you in the right direction)
also p.s. i can't remember if you said you had any kind of MRIs or any kind of scans or anything but i guess just cos i had one friend who had a terrible lower back and arthritic stuff and it turned out she had anklyoising spondylitis you could probably get that checked out but say that to the docs and they really WILL think you been Dr Googleing it unfortch. but i guess make sure theres no family history of backbones fusing togetherp.p.s the website said he avg time for diagnosis of hypermobility let alone treatment was 10 years so you're doing slightly well in that respect i guess????????????? fwiw
acupuncture is something i wouldn't want 2 do bc of the fibro like symptoms i have lol. gentle touch feels like punch and the last time i had blood taken it hurt like buggery sdjfklsdf
yea i got the hypermobility diagnosis when i was uhhhhhhhhhhh 21/22 after it starting when i was 13/14 (ten years of this bs what genetic lottery crap is this smh). docs have tried putting me on the other fam of medications and i was put on naproxen but me and naproxen don't get along. it gets rid of the pain BUT instead i get horrible stomach cramps and i feel like my joints are made of cotton wool and sugar paper so i went back to the docs like "can i have my codeine back? thnx". they're super hesitant to put me on anything stronger (and when i went to the hospital a few years back for my heart the doc said "codeine wow we should get you off of that!" and i said "i've only just been put on it" and he wa slike "o" orz
yeah it's just this one particular doctor who seems to just brush me off?? i only picked her on the booking thing bc i didn't fancy getting up at 7am. thankfully i don't think she's my specific gp coz otherwise i'd be annoyed as heck. tryng to get in to see one of the docs soon but the only free ones when i check are either 1) ass end of the morning or 2) temporary docs so i'm more hesitant to pick themi never got a leaflet it was just a "yeah ur bendy lol bye" and that was basically it. i got sent to the physio for 9 months but the exercises didn't rly seem to help??? and i'm ngl i haven't rly been keeping up with them bc i don't have Energy and also Forgot What Exercises i was given after I got the inistial bit of paper kaldsja
but i had a similar issue, not as bad but still messy: my thyroid is broken to the point where i just got it completely removed last month but back in like 2012 it took me almost a year to get someone to figure out why my arms hurt so much. i was in agony every time i moved even slightly it was a shooting pain for like 20 minutes after. as you know you need arms and hands to do most things so i was effed for daily life, and it eventually spread to my upper arms, then my shoulders, until my entire body was just unable to move without being in pain, and to cut a long-ass story short, i eventually got blood tests and got told "oh, you need a higher dose of thyroxine, go from 75mg to 150mg"like... when someone with hypothyroidism comes to your clinic, saying "hey i have muscle and bone problems" which is an issue in people with hypothyroidism, you generally think "ah, maybe we should run some blood tests"the worst part is i got blood tests throughout that year but got told nothing was wrong. like... how do you mess that up. sometimes i wonder if paying for healthcare over in america might help more than whatever this is.